So, I picked up my usual bi-monthly blood test results today and over all, it's pretty ok with all the electrolytes in normal ranges and the hemoglobin count--after only one week of iron supplementation up over one point, taking me to 10.9 and that's great.
What was less great was seeing my kidney filtration rate, (aka GFR), go from 35 to 33. Also less than inspiring was noting the Creatinine at higher level, (not good), than last time.
I thought that this last round of chemo would have at LEAST given me a few points in the right direction with the GFR but non.
What's really taxing my mojo reserves though, is that due to the extended chemo rounds ordered by my doc, my plans to be in blessed Canada this July with P have been rain-checked. Depending on this immune system of mine and how fast it recovers from the chemo, we *may* be able to make the trip in September but at this point and staying true to this blog's name, it's juan day at a time and I gotta roll with it all, hard as it is sometimes.
I sure could use a hug right now as I really can't express just how MUCH I was longing to be with my dear family again and my sorely missed Canuckian friends after already 6 months of this heavy treatment and rather isolated existence--now to be 8 months and with another 6 to follow of a new treatment regime.
As I understand it, this new treatment, called Rituximab, along with glucocorticoids, will happen after the last chemo session. It will be given as a day patient, like chemo, in the hospital and frankly after reading about it, which you can do here, I'm scared. The side effects and even risk of death and untreatable possible brain damage are enough to make me not want to even do it. BUT, this treatment apparently reduces relapses of MPA from 30% to only 5% and that is promising. And on the upside, Rituximab has been referred to as "liquid gold", by some fellow MPA patients I've come to know in a support group and I'll be pulling on their pantlegs about this too.
I need to dig a lil deeper on this stuff.
And I need to stop crying already, although it IS probably good for lessening the sodium levels at least, plus I'm outta kleenex...
That's it for me today, gonna pet Tony now and have a hot bubbly bath after. He's plum tuckered out after a long walk and some off-leash romping in the park with two young pooches. It was a joy to see the ole Pappy running free.
bon weekend, All,