Saturday, June 1, 2013

I'm In!

Greetings dear Readers on this (finally!), sunny French Day,

Just a wee note to share that the great Professor/Dr. Guillevin, "top international authority on Vasculitis", has accepted me as a patient and I have an appointment for June 14th.

I'm really looking forward to meeting this man and learning more about Rituximab and all the new trials being done, using it both as aggressive treatment and for maintenance.

For those interested, here is a link to an interview with him on that very subject.

In other news, today I got some blood tests back and while most of it is great: my GFR, (kidney filtration rate), is up again at now, 36 (YAY!), and the hemoglobin is but half a point away from normal, (DOUBLE YAY!), my cholesterol however, is pretty darned high and me no like.

As it was myself who requested the cholesterol levels be checked, (to a different doc), I faxed the results to my Nephrologist along with some Q's, (of course), and hopefully this will be fixable with diet and not more damned pills.

Fingers crossed...

Perhaps it's just another effect of kidney disease and the lil beans just not being able to process saturated fats as well as they used to?

And regarding "The Voice", I've been on these new BP meds for 4 days now and so far--minimal hoarseness in the pipes!  (TRIPLE YAY!)   That loss of vocal presence was rather getting to me as it's amazing how much sounding like crap can affect one's morale.  It's still a lil scratchy at times, but not as bad as it was.

So boom, there it be 'n cheers for reading.

Have a sweet weekend, All.

+++vibes,

: J

6 comments:

Victoria Clark said...

Yay! such good news...I do hope you mean June 14th not May 14th for you appointment :)

Juanita Grande said...

Bien Note' and thanks Victoria. ; )

Hope all's well in your world these days...

: J

Jude said...

Hell yeah more good news! *grin*

As for the cholesterol, mine shot way up several years ago, and after taking myself off the statin drugs to combat that, I began eating oatmeal almost every day. My cholesterol is so much better. I'm just not sure if oatmeal is something you can eat?

Juanita Grande said...

Thanks, Jude. : )

And yaknow, since I've been home from the H, I've been having organic rolled oats for breakfast each morning, (though only 1/2 cup at-a-time due to the potassium content), and STILL, this problem. One I've never had before.

Could be the kidneys, could be due to one of the many meds I'm still on, just don't know and curious to hear what the doc says...

: J

Anonymous said...

It's good to see things are, generally speaking, looking up for ya!

Cheers,
nobby

Juanita Grande said...

Cheers back, Nobby!

And with those things, a BIG blue sky over Paris and THAT'S some sweet medicine on its own.

Gonna milk it now with a big pooch hike in the park.

: J