I write this post today with an incredible feeling of relief, wonder and deep happiness, for this is a post I have been waiting to write for 6 long, tough months and to actually be doing it is just surreal and here goes.
I, Juanita Grande, after all these drugs and chemo and eating uber-well, am now officially IN REMISSION from Microscopic Polyangiitis!!!
YES! YES! YES!!!
It's TRUE and I still am whirling with the news that I discovered only yesterday when at the hospital for the signing of the drug trial papers for Rituximab. The doc-in-charge who was briefing me on how the study will go just kinda casually mentioned while looking at my file on the screen that indeed, as of the last ANCA levels blood test done at the hospital, I AM FINALLY TESTING NEGATIVE!!!
Never thought negative could be such a positive word. :)
And to learn of this heart-hugging, mind-melting, soul-blowing news on the last day of my dear parents' visit here in France, was just the cherry on the already unbelievably delicious cake!
When I got home and shared it with them we all hugged and cried and laughed together, basking joyously in this blessed news I have been soooo longing to hear for so lonnnng and wow. Just wow. I am still in some kinda shock!
Here's a photo I snapped while in the cab on the ride home as I drank in this great news:
This will be followed, I believe, by another of the same 2 weeks later and then---NOTHING for the next 5 1/2 months!
It will be immensely wonderful to have such a long break from all this medical activity and here's to this "liquid gold", medication being just what it takes to kick this form of Vasculitis I, (no longer!!!), have to the bench forEVER.
Of course, the kidney regime and further treatment for it, (in the form of the BP meds which also improve kidney filtration and yes, the new ones steal my voice too, it seems), will continue, as that's a whole other ball o' medical wax and I will keep up the good fight, eating right and staying fit for LIFE.
But for now, MORE CHAMPAGNE!!! (Just a smiiiidge ; ), and even more light and hope and joy and thankfulness--all in time for summer!
And on that note, I shall spend this rainy and stormy day taking it slow and eeeeeasy as even though I'm starting to feel better these days at last, I'm plum worn out and at not even 9am, I'm already thinking about a nap, heheheh...
Be well, All and thanks again to everyone out there who's been keeping tabs and checking in on me during this whole affair. It means A LOT.