Monday, May 23, 2016


Gooooooooood Morning, All,

Writing today mostly to share some recent visual art, this time a return to acrylics after more than a decade off that horse.

This piece was inspired by a photo P took near the river last summer and in these particular times of so many hippy/activist-types movin' on into their golden years, turns out it's a pretty hip painting.

Just last week, P showed me a meme of an elderly person sporting a black T-shirt with big white letters boldly stating, "Old is the New Black".

But my chosen subject matter is a total coincidence, I just loved the photo and memory.

I call this one, "The Gang Gets--Their Bench".

It's a bit of a French-English pun, as the photo was taken at a "guingette", (pronounced, "gang get"), meaning, basically, a riverside cafe that also has live entertainment on the weekends.

In other less colorful news, I am not pleased to share that since reaching 0 megs of prednisone in February, I have been struggling with increased joint pain from my fingers to my toes, along with still,  random and repeating lightening bolts of harsh pain all over too--which I REALLY hoped would do a fade out as my body adjusted to being off the dreadnisone, mais non. 

I will be seeing my Rheumy-Professor in early June to talk about what I feared a long time ago, and that is, the distinct possibility that all the prednisone I have been on for the last three years has been masking yet another condition, which now that I'm off the stuff is rearing again.

Or these pains could just be due to damages from the MPA.

Or perhaaaaaaps, the pains are all just due to osteoarthritis, which came on the scene in '06/07. 

X-rays then showed: a lumbar disc already almost gone, deterioration between C4-7 with a reverse-angle in the neck thanks to more than 8 seconds as a rodeo-rag doll impersonator back in the day, as well an MRI that showed right knee deterioration.

And still, I try to manage this, by the day's end, usually crippling pain with merely nearly-useless paracetamol, (Tylenol), and off and on, low-dose Tramadol.

Due to an opiate/oid allergy and the kidneys, my pain management choices are minimal.

It will be JUAN FINE DAY when ole France finally gets on board the medical cannabis train.   But that's a subject for an entirely new blog post.

And even though I thought that by now, THREE years post-acute renal failure and after thousands of milligrams of prednisone, multiple rounds of chemo AND Rituximab, things would be different--I am still basically 90 years old and in the sack by 7 or 8pm nightly.

On the upside, I recently had blood work done, (MPA control, not kidney), and amazingly, almost all the values were in normal range!  (Total cholesterol was a hair over the line, but not the LDL nor the triglycerides and yay).

ANCA is still 1:20 (negative being under that), but with near-non-existent MP0/PR3 levels, coupled with the stable kidneys, it all adds up to my being considered still, in medical remission from Vasculitis and yay again for that.

And more high-fives to healthy eating.

And this week, the ole beans will be tested too, so toes-crossed for continued stability there.

'Til next time, likely post-Rheumy-visit, bon vibes to All,



StudioSlave said...

I'm really glad I took that pic dear! 👏 <3

Teresa Hampton said...

Yay,! Remission! I think It's close! Much Love Juan day at a time!

Juanita Grande said...

Much love back, my dear MPAL.

And yes, P, glad you captured their "fronts", heheh, forever in that photo.